History

 

 

 

 

The Leukodystrophies Foundation was founded on March 1, 2006 as a donnor fund at the Fondation Communautaire du Grand Québec (Greater Quebec Community Foundation).

It was formed by the parents of Alexis Verville-Tailleur, a little boy who has an unknown type of leukodystrophy.

The foundation’s main goal is to support research in order to offer hope to the children stricken with this terrible degenerative disease. 

Also, after identifying the causes of this disease, the foundation seeks to promote the development of treatments aimed at controlling and curing the disease. 

The foundation also seeks to raise awareness of the disease, in the hopes of sensitizing the public to the despair caused by this disease. 

The foundation is working in close collaboration with Dr. Michel Sylvain, a specialist in pediatric neurology at the Centre Hospitalier Université Laval (CHUL) in Québec City, Canada.

Our mission

  Support research
 

	Notably by collecting donations from various sources and distributing research grants to help determine what causes this disease.

  Develop treatments
 

helping to slow down  or stop the progress of this disease.

  Raise awarness
 

By using our Web site to teach about the disease. By organizing benefit activities to help people know about leukodystrophies and their effects. Lastly, by allowing families touched by this disease to share their experiences with other parents who are living the same things.

 Our partners
 

	Fondation Communautaire du Grand Québec Mme.Nataly Rae
	IRDPQ (Institut de Réadaptation en Déficience Physique du Québec) M.Luc Pelletier
	CHUL (Centre Hospitalier de l'Université Laval)
	Dr.Michel Sylvain (Neurologist)

special thanks

We would like to say a special thanks to everyone who has helped us with this project. (click here)